TS and Bullying

It's sad to know just how many kids with Tourette Syndrome deal with bullying on a daily basis.  Most of the time, it comes in the form of verbal bullying - nasty comments, name calling, and other verbal attacks that the ticcer faces, most often due to ignorance about the disability.  Even worse are the physical attacks that those with TS (and other disabilities) can also face.

I take part in several different online communities for families affected by Tourette Syndrome.  This morning, I found a post from a parent about the recent bullying her son had experienced.  In fact, the bullying is so bad that he has experienced 8 (yes EIGHT!!) physical assaults in one year.  Most recently, he was left with a moderate to severe concussion that will have him out of school, on homebound education, for the month of January while he recovers.  Of course, the recovery will only be physically.  The emotional scars will remain with him for much, much longer.

To make matters worse, he has been punished for his disability by teachers who lack the understanding of his disability, and by a school that falsely believes that the issues he faces as a result of his Tourette Syndrome are behavioral, rather than the result of his neurological disorder.

I invite you to take a stand against bullying, both from peers and from educators, especially in the case of this poor young boy.  Please read the post that was written by his father at https://exceptionaldelaware.wordpress.com/2014/12/31/the-last-post-of-2014-will-be-a-huge-part-of-2015/ and has already been making its way through social media, being shared in hopes of helping bring much-needed change to his school district.

I hope and pray that this young boy can finally find peace within his school, that he can finally have the chance to have the normal school experience that he deserves.

Tourette Syndrome Awareness Month

May 15 through June 15 is officially designated as Tourette Syndrome Awareness Month.  This is a month made to help bring awareness to others about an obstacle so many people around the world live with on a daily basis.  They are challenged with tics, many of which can make life hard to live with.  They face a life full of challenges that are both physical and emotional.  Their brains take control of their bodies, and they have little control over the actions their bodies are taking at the hands of their overly active brains.  Each day, those with Tourette Syndrome battle with their brains, fighting to take control over the desire to blink excessively, shake their heads, repeat words, and so much more.

The most common thing I've heard as a parent of a child with Tourette Syndrome is one simple question.  "He's not going to start cussing is he?"  (BTW- the proper term for the use of obscenities and slurs is coprolalia).  It sounds innocent enough, but it really shows just how misunderstood Tourette Syndrome is.  I recently encountered someone who suggested that Tourette Syndrome had a spiritual link because "it almost always is accompanied by swearing".  It made me realize just how wrong people often are in how they view this condition.  According to the Tourette Syndrome Association website, "cursing, uttering obscenities, and ethnic slurs are manifested by fewer than 15% of people with TS."  Somehow 15% doesn't sound like "almost always" to me.  And the truth is, the majority of those I've talked to that either have TS or have family members with TS are Christians with a strong sense of faith and a very good connection to God.  Tourette Syndrome affects people of all religions, just as it affects people of all races, genders, and even income levels.  Tourette Syndrome doesn't discriminate.  It doesn't select those who are less spiritual than others.


As I've mentioned, those with Tourette Syndrome are faced with a number of challenges.  Tourette Syndrome often coexists with disorders such as Obsessive Compulsive Disorder (OCD), anxiety, Attention Deficit Disorder (ADD), Attention Deficit Hyperactivity Disorder (ADHD), Sensory Processing Disorder (SPD), Sensory Integration Disorder (SID), insomnia, bipolar, depression, or any number of other behavioral, learning, or sleeping disorders.  As if these challenges are not enough, many people who live with Tourette Syndrome are faced with the reactions of those who do not understand the condition.  There are the countless stares, the snide remarks, and the bullies.  Sometimes, there are even those who deal with family members who, for lack of understanding or out of embarrassment, make nasty comments or even go to the point of emotional abuse rather than giving support, comfort, and love.  The home and the family should be a comfort zone for those with TS, but sadly this isn't always the case.


While there are those with Tourette Syndrome who would rather hide their condition from those around them, there are many more who long for acceptance and understanding.  Please take the time, during Tourette Syndrome Awareness Month and the rest of the year, to find out more about TS and the lives of those living with it.  Should you have any questions about Tourette Syndrome, please check out the links along the side of this blog or feel free to ask me any questions that I might be able to help you with.