I missed my post for day 7 of Tourette Syndrome Awareness Month, so I decided I'd do a quick one this morning to make up for it. This past school year has been filled with struggles for Monster Man at school. Through it all, though, he's managed to maintain his grades to mostly A's and B's (one very high C). It hasn't been easy, and he's faced many challenges along the way, but that's how it tends to be for students with Tourette Syndrome.
Tourette Syndrome can be hard enough to live with at home, let alone to be in a classroom setting, with students that can see (and possibly make fun of) the tics, teachers who think the student is being disruptive, and the added stress of trying to keep up with the lessons while controlling the urge to tic. So many co-morbid issues add to these problems, as well, such as ADHD and disgraphia. The classroom setting can be very stressful indeed for students with Tourette Syndrome.
The Tourette Syndrome Association offers many resources to help educators understand and prepare for students with Tourette Syndrome. As parents, it can help make our children's classroom lives easier if we provide their teachers with some of these materials. It would also be helpful for schools to keep some of these materials (many of which can be found for free or at a very low cost) on hand to prepare not only for current students with TS, but for any new students that might come along or anyone that might get diagnosed. Being prepared can make the classroom life so much easier for everyone involved.
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Showing posts with label educating others. Show all posts
Showing posts with label educating others. Show all posts
Tuesday, May 22, 2012
Friday, January 14, 2011
Protection from the outside world
There seems to me that there is no greater evil to someone with Tourette Syndrome than people who don't understand. This is especially true when those that don't understand are in your own family. I have been working hard to get my husband to understand what Monster Man is going through, but it isn't an easy task. I figured that he would be the one person who would be most likely to understand the challenges that Monster Man is faced with; after all, it's my hubby who has epilepsy and who has struggled with ADD. Instead, though, I listen to him fuss at Monster Man for the things that my sweet boy cannot control. Some of his tics can get frustrating, I'll admit, but it is heartbreaking to hear my son get fussed at for his tics, and it is even more heartbreaking to hear Monster Man's reaction. You can hear how upset he gets, and you can certainly see it on his face.
I want to take him under my protective wings and shield him from all harm, but I know that this will only make matters worse in the long run. I know that I must teach Monster Man how to stand up for himself, how to face those that are not understanding and to teach them rather than to run away.
I've had several people suggest that we watch Front of the Class, a Hallmark Special Presentation about a real life teacher with TS. I have tried to find this for rent, but have been unsuccessful. It has aired a few times in recent months, but we do not have cable to be able to watch it while it is on. I am planning to purchase my own copy soon so that I can use it not only to educate my family, but to also share with others who might want to know more about Tourette Syndrome.
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